Tsis muaj ib yam dab tsi uas mob siab tshaj qhov piav qhia rau koj tus menyuam tias lawv qhov mob yuav tsis zoo dua thiab tam sim no kev saib xyuas yog tsom rau kev nplij siab, tsis kho. Tej zaum koj yuav tsis paub yuav hais li cas los yog yuav hais li cas. Tej zaum koj yuav xav tsis thoob yog tias koj yuav tsum hais dab tsi txhua.
Tab sis cov me nyuam yog intuitive. Lawv paub tias thaum muaj ib yam dab tsi loj tshwm sim, thiab tso tawm qhov kev sib tham tsis zoo no tuaj yeem ua rau lawv tsis meej pem. Tias yog vim li cas qhib, ncaj ncees, thiab muaj hnub nyoog sib txuas lus yog ib qho khoom plig zoo tshaj plaws uas koj tuaj yeem muab ua niam txiv.
Hmoov zoo, koj tsis tas yuav ua qhov no ib leeg. Qhov Kev Pabcuam Cardinal Kids ntawm Carolina Caring nyob ntawm no los kho koj thaum koj lub suab co thiab koj lub siab mob. Hauv blog no, peb muab kev nkag siab txog yuav tham nrog koj tus menyuam li cas.
Nkag siab txog Koj Tus Menyuam Txoj Kev Loj Hlob
Yuav tham nrog tus menyuam li cas txog kev mob yog nyob ntawm lawv txoj kev loj hlob. Thaum koj nkag siab tias cov me nyuam feem ntau xav thiab xav li cas thaum muaj hnub nyoog sib txawv, koj tuaj yeem xaiv cov lus thiab cov lus piav qhia uas pab lawv muaj kev nyab xeeb thiab txhawb nqa thaum tham txog kev saib xyuas menyuam yaus.
Hnub nyoog 3 txog 5
Cov menyuam yaus hnub nyoog no pom lub ntiaj teb no yooj yim, cov ntsiab lus tseem ceeb. Tej zaum lawv yuav xav tias qhov mob uas tsis muaj sia nyob yog ib ntus lossis qee yam uas lawv "tshem" zoo li khaub thuas. Nws kuj tsis yog qhov tsis yooj yim rau cov menyuam yaus xav tias lawv tus mob yog kev rau txim rau kev ua "tsis zoo."
Thaum tham nrog cov menyuam yaus txog tsev kho mob, lawv yuav tsum xav tias hlub. Siv lus mos, lees paub zoo li, "Koj tsis ua qhov no," thiab "Peb nyob ntawm no los saib xyuas koj." Cov lus piav qhia txog kev mob rau menyuam yaus kuj tseem ceeb.
Hnub nyoog 6 txog 9
Cov menyuam yaus hauv lub hnub nyoog no pib nkag siab tias kev tuag yog qhov ruaj khov, tab sis lawv tseem yuav tuav txoj kev xav zoo li qub. Piv txwv li, tej zaum lawv yuav ntseeg tias yog lawv "xav kom txaus," tus mob yuav ploj mus.
Cov menyuam yaus hnub nyoog qis dua kuj xav paub ntau ntxiv thiab tuaj yeem nug ntau cov lus nug thaum tham txog kev mob thaum yau. Nws yog ib qho tseem ceeb kom ua tau raws li lawv cov lus nug nrog cov lus piav qhia txog kev mob rau menyuam yaus uas ncaj ncees tab sis tsis yooj yim.
Hnub nyoog 10 txog 12 xyoos
Cov menyuam yaus hauv pawg hnub nyoog no muaj kev nkag siab ntau dua ntawm kev mob thiab kev tuag. Lawv paub tias nws mus tas li thiab tej zaum yuav nug cov lus nug uas muaj nyob thaum lawv sim ua kom paub txog lawv qhov kev paub.
Preteens kuj muaj qhov nyiam zais lawv txoj kev xav kom tsis txhob muaj kev ntxhov siab rau cov neeg laus. Raws li ib tug niam txiv, nws yog ib qho tseem ceeb los tsim qhov chaw rau kev sib tham ncaj ncees txog kev saib xyuas menyuam yaus palliative .
Cov hluas
Cov tub ntxhais hluas nkag siab qhov mob hnyav thiab tuag, tab sis qhov no tsis tas yuav ua kom yooj yim dua. Ntau tus tub ntxhais hluas sib tw nrog kev xav tob uas yuav tshwm sim thaum tshem tawm, chim siab, lossis lub siab hloov pauv.
Thaum xav txog kev tham nrog tus menyuam txog kev mob, tshwj xeeb tshaj yog cov hluas, sim mus ntsib lawv qhov twg lawv nyob. Yog tias lawv tsis npaj qhib rau koj, lawv yuav zoo siab tham nrog tus kws pab tswv yim lossis koom nrog pab pawg phooj ywg.
Yog tias koj tsis paub meej tias yuav pib sib tham txog kev mob thaum yau li cas, nco ntsoov tias koj tsis tas yuav ua nws ib leeg. Cov kws tshaj lij uas tshwj xeeb hauv kev saib xyuas palliative rau cov tub ntxhais hluas raug cob qhia los txhawb tsev neeg los ntawm cov lus nyuaj no. Lawv tuaj yeem pab koj nrhiav cov lus uas yog thiab muab kev qhia siab hlub thaum koj xav tau tshaj plaws.
Thaum Yuav Muaj Cov Kev Sib Tham no
Txawm hais tias tsis tshua muaj lub sijhawm "zoo meej" los tham nrog koj tus menyuam txog kev saib xyuas menyuam yaus, tos ntev heev tuaj yeem ua rau tsis meej pem thiab ntshai.
Koj tus menyuam tuaj yeem npaj rau kev sib tham txog hnub nyoog txog kev mob yog tias lawv:
- Nug cov lus nug ncaj qha lossis rov hais dua txog kev mob, kev kho mob, lossis kev tuag
- Qhia txog kev hloov siab ntsws xws li kev tshem tawm, kev chim siab, lossis kev ntxhov siab
- Qhia kev ntshai lossis kev txhawj xeeb los ntawm kev ua si lossis dab neeg
- Nrhiav kev kov lub cev thiab kev nplij siab ntau dua
- Xav siv sijhawm ntau nrog tsev neeg lossis cov neeg hlub
Yog tias koj tsis paub meej tias tam sim no yog lub sijhawm, tus kws tshaj lij lossis tus kws pab tswv yim tuaj yeem muab kev taw qhia raws li koj tus menyuam lub hnub nyoog thiab lub peev xwm ntawm kev xav.
Sijhawm thiab Kab Mob Kev Loj Hlob
Tham nrog cov menyuam yaus txog tsev kho mob feem ntau ua rau muaj feem cuam tshuam ntau dua thaum lawv muaj mob. Kev hloov pauv ntawm tus mob lossis kev kho mob tuaj yeem ua rau muaj lus nug tshiab, thiab lub sijhawm no yog lub sijhawm los muab cov lus piav qhia ncaj ncees.
Koj tuaj yeem pib tham nrog koj tus menyuam txog kev saib xyuas menyuam yaus thaum:
- Muaj kev hloov pauv hauv kev kuaj mob
- Lawv pib, nres, lossis hloov kho
- Cov tsos mob tshiab tshwm sim los yog cov tsos mob uas twb muaj lawm zuj zus lawm
- Kev tsom xam txav los ntawm kev ntsuas curative mus rau kev nplij siab
- Kev nyob hauv tsev kho mob ua ntau zaus lossis ntev dua
Nws tseem ceeb heev uas yuav tsum nco ntsoov tias kev sib tham txog kev saib xyuas menyuam yaus yog ib feem ntawm kev sib tham tsis tu ncua. Raws li qhov xwm txheej hloov, koj tus menyuam yuav rov qab mus rau lub ntsiab lus nrog cov lus nug tshiab lossis kev txhawj xeeb.
Tsim kom muaj chaw nyab xeeb rau kev sib tham nyuaj
Tham nrog cov menyuam yaus txog tsev kho mob tsis yooj yim. Tsis muaj ib tsab ntawv zoo meej, thiab koj tsis tas yuav tau txais nws raws nraim qhov kev sib tham kom muaj txiaj ntsig. Qhov tseem ceeb tshaj plaws yog qhia txog kev ncaj ncees, kev hlub, thiab kev txaus siab mloog.
Kauj ruam 1: Xaiv lub sijhawm thiab qhov chaw
Xaiv ib qho chaw uas koj tus me nyuam xav tau yooj yim. Xaiv ib lub sij hawm ntawm ib hnub thaum koj tsis tau maj los yog nkees, thiab nco ntsoov tua cov xov tooj, TVs, thiab lwm yam cuam tshuam.
Kauj Ruam 2: Npaj Koj Tus Kheej Lub Siab
Ua ntej kev sib tham txog kev mob me nyuam yaus, xyuas nrog koj tus kheej txoj kev xav. Qhov no yog lub ntsiab lus hnyav, thiab nws yuav pab tau ua pa tob tob, mus taug kev luv luv, lossis sau ob peb lub ntsiab lus tseem ceeb uas koj xav kom npog.
Kauj Ruam 3: Nqa Kev Txhawb Nqa
Yog ua tau, ob leeg niam txiv lossis tus saib xyuas thawj zaug yuav tsum tuaj nrog tham. Qee qhov xwm txheej, koom nrog tus neeg ua haujlwm sib raug zoo lossis tus kws pab tswv yim tuaj yeem ua tau zoo, thiab.
Kauj Ruam 4: Muab kev nplij siab thiab kev cia siab
Muaj cov khoom uas paub nyob ze, zoo li cov tsiaj nyiam nyiam los yog daim pam. Qhia rau koj tus menyuam paub tias nws zoo kawg nkaus los nug cov lus nug, qhia lawv txoj kev xav, lossis tsuas yog zaum ntsiag to.
Kauj Ruam 5: Npaj rau Kev Sib Tham Txuas Ntxiv
Qhia tawm cov ntaub ntawv ntau npaum li koj tus menyuam tuaj yeem ua tam sim no. Txhawb kom lawv rov qab los nrog ntau cov lus nug lossis kev xav.
Hnub Nyoog Tsim Nyog Txoj Kev Qhia Txog Kev Mob thiab Kev Kho Mob
Cov menyuam yaus ua cov ntaub ntawv sib txawv ntawm txhua theem ntawm kev loj hlob. Muaj kev sib tham txog hnub nyoog tsim nyog txog kev mob thiab kev tuag tuaj yeem pab tsim kev nyab xeeb ntawm kev xav.
Rau Cov Me Nyuam Yaus (hnub nyoog 3 txog 7)
Nyob rau theem no, cov menyuam yaus xav txog cov ntsiab lus tseem ceeb heev. Khaws cov lus yooj yim thiab ua tiav.
"Koj lub cev mob heev. Tab sis muaj cov pab tshwj xeeb uas yuav ua kom koj tsis txhob mob."
- Qhia meej tias cov kws kho mob thiab cov kws saib xyuas neeg mob ua haujlwm pab kom lawv xis nyob.
- Tsis txhob siv cov lus tsis zoo xws li "mus pw" los piav txog kev tuag.
- Siv phau ntawv dab neeg, duab kos, lossis cov khoom ua si los piav txog qhov tshwm sim.
- Muab kev lees paub zoo ib yam tias lawv hlub thiab tsis txhob liam.
Rau cov menyuam hnub nyoog kawm ntawv (hnub nyoog 8 txog 12 xyoos)
Cov menyuam yaus hnub nyoog no xav paub ntau dua thiab muaj peev xwm nkag siab tias lub cev ua haujlwm li cas. Tej zaum lawv yuav nug cov lus nug ntxaws lossis xav paub seb yuav ua li cas ntxiv.
"Cov kev kho mob tsis ua hauj lwm lawm, yog li tam sim no peb tab tom tsom rau kev ua kom koj xis nyob thiab ua tej yam uas pab koj zoo."
- Siv cov ntsiab lus kho mob kom raug thiab maj mam thaum piav qhia txog kev mob rau menyuam yaus.
- Qhia pab neeg saib xyuas thiab piav qhia lawv lub luag haujlwm (piv txwv li, "Tus neeg ua haujlwm pabcuam pabcuam peb tham los ntawm kev xav.").
- Tham txog kev kho mob palliative li kev saib xyuas uas tsom rau kev nplij siab es tsis yog kho.
- Ua qhov chaw rau lawv txoj kev xav, txawm tias lawv tsis qhia tam sim ntawd.
Rau Cov Hluas (hnub nyoog 13+)
Cov tub ntxhais hluas tuaj yeem nkag siab cov tswv yim nyuaj thiab tej zaum yuav xav koom nrog kev txiav txim siab ntau dua. Lawv kuj xav tau qhov chaw los ua lawv txoj kev xav ntawm nws tus kheej.
"Peb xav ua siab ncaj rau koj thiab suav nrog koj hauv cov kev sib tham no. Koj tsim nyog paub tias muaj dab tsi tshwm sim thiab pab txiav txim siab txog kev saib xyuas koj."
- Qhia tawm cov ntaub ntawv qhib, siv cov ntsiab lus meej thaum tseem ceeb.
- Koom nrog lawv hauv kev sib tham txog cov hom phiaj ntawm kev saib xyuas.
- Pib sib tham txog kev npaj saib xyuas ua ntej, yog tias tsim nyog.
- Saib xyuas lawv txoj kev ywj pheej loj hlob thaum muab kev txhawb nqa kev xav.
Cov kev sib tham no nyuaj, thiab tsis ua li cas rau kev ntxhov siab. Hmoov zoo, koj tsis tas yuav ua qhov no ib leeg. Pediatric palliative thiab hospice care specialists tuaj yeem pab koj tham nrog koj tus menyuam hauv txoj kev txhawb nqa, tsim nyog rau hnub nyoog.
Koom nrog cov menyuam hauv kev txiav txim siab saib xyuas
Kev koom nrog cov menyuam yaus hauv cov kev xaiv saib xyuas uas tsim nyog rau hnub nyoog tuaj yeem ua rau muaj kev nkag siab ntawm lub koom haum thaum lub sijhawm uas lawv xav tias lawv tswj tsis tau.
Rau Cov Me Nyuam Yaus (hnub nyoog 3 txog 7)
Cov menyuam yaus muaj kev nyab xeeb tshaj plaws thaum muab kev xaiv binary (piv txwv li, "qhov no lossis qhov ntawd").
Txoj hauv kev muab kev xaiv:
- "Koj puas xav hnav koj cov thom khwm liab lossis ntsuab?"
- "Koj puas xav saib yeeb yaj kiab lossis nyeem ib phau ntawv thaum tus kws saib xyuas neeg mob tuaj xyuas?"
- "Puas koj dais lossis menyuam roj hmab tuaj nrog peb mus rau kws kho mob?"
Rau cov menyuam hnub nyoog kawm ntawv (hnub nyoog 8 txog 12 xyoos)
Cov me nyuam hnub nyoog no ua tau zoo thaum lawv tuaj yeem txiav txim siab txog lawv txoj haujlwm niaj hnub. Tsuas yog nco ntsoov khaws cov kev xaiv yooj yim thiab tswj tau.
Txoj hauv kev muab kev xaiv:
- "Koj puas xav ua kev kho lub cev thaum sawv ntxov lossis yav tav su?"
- "Koj puas xav muaj tus qhua hnub no lossis ua kom nws nyob ntsiag to?"
- Cia lawv rov npaj lawv chav lossis xaiv cov khoom dai.
- Nug seb cov tswvcuab twg hauv pab neeg saib xyuas lawv zoo siab tshaj tham nrog.
Rau Cov Hluas (hnub nyoog 13+)
Cov tub ntxhais hluas muaj nuj nqis rau kev ywj pheej thiab yuav tsum suav nrog kev txiav txim siab muaj txiaj ntsig thaum twg ua tau.
Txoj hauv kev muab kev xaiv:
- Caw lawv los koom kev sib tham txog kev tswj cov tsos mob, lub hom phiaj kev nplij siab, thiab kev nyiam kho mob.
- Nug cov lus nug xws li, "Dab tsi tseem ceeb tshaj rau koj tam sim no?" thiab "Dab tsi pab koj zoo li koj tus kheej?"
- Cia lawv txiav txim siab siv lawv lub sijhawm thiab leej twg lawv siv sijhawm nrog.
- Muab lawv cov cuab yeej los sau lawv cov kev xav thiab nyiam.
Txhua tus menyuam yaus sib txawv ntawm kev tswj hwm lawv xav tau npaum li cas rau lawv txoj kev saib xyuas. Qee tus xav tias muaj kev txhawb zog los ntawm kev koom tes, thaum lwm tus nyiam cia cov niam txiv ua thawj coj. Txawm li cas los xij, koj yuav tsum ua kom koj tus menyuam paub tseeb tias, ua niam txiv, koj yuav txiav txim siab nrog lawv qhov kev nyiam tshaj plaws hauv siab.
Qhia Txog Lub Ntsiab Lus Txog Kev Npaj Kho Mob Ua Ntej
Kev npaj saib xyuas qib siab yog hais txog kev ua kom tus menyuam lub suab tau txais txiaj ntsig thoob plaws hauv lawv txoj kev saib xyuas.
Rau cov menyuam yaus, qhov no tuaj yeem yooj yim li xaiv cov suab paj nruag los mloog, cov khoom siv nplij siab dab tsi los coj mus teem sijhawm, lossis leej twg lawv xav nyob ze thaum lawv tsis xis nyob. Qee cov menyuam yaus kuj tseem nyiam ua cov haujlwm qub qub, xws li tsim lub thawv nco nrog cov neeg hlub.
Cov menyuam yaus thiab cov hluas tuaj yeem npaj rau kev sib tham tob. Tej zaum lawv yuav xav tshawb nrhiav lawv txoj kev xav txog kev mob, kev tuag, thiab kev ntseeg lossis kev ntseeg ntawm sab ntsuj plig; dab tsi qub txeeg qub teg lawv xav tso tseg; thiab yuav ua li cas lawv xav kom nco ntsoov. Yog tias koj tus menyuam qhib rau nws, koj tuaj yeem muab cov cuab yeej qhia ua ntej uas tsim nyog rau hnub nyoog los pab lawv sau lawv cov kev nyiam saib xyuas.
Cov Kev Pom Zoo Tshaj Plaws thiab Yuav Ua Li Cas Rau Lawv
Cov menyuam yaus uas ntsib kev mob hnyav feem ntau xav tias muaj kev sib txuam ntawm kev xav hnyav. Cov kev xav no qee zaum tuaj yeem ua rau muaj kev coj cwj pwm nyuaj, uas tuaj yeem ua rau cov neeg saib xyuas tsis paub meej tias yuav teb li cas.
- Kev Nyuaj Siab: Cov menyuam yaus yuav muaj kev hloov pauv sai sai ntawm kev xav, thawb koj tawm ib feeb thiab nrhiav kev nplij siab tom ntej. Siv lawv txoj kev xav nrog cov lus xws li, "Kuv pom tias koj npau taws heev tam sim no."
- Regression ntawm tus cwj pwm: Cov menyuam yaus tuaj yeem pib ntiv tes xoo lossis pw tsaug zog dua. Teb rau cov cim ntawm kev ntxhov siab no nrog kev ua siab ntev thiab kev lees paub.
- Rov ua cov lus nug: Cov menyuam yaus yuav nug tib cov lus nug nyuaj ntau zaus. Muab cov lus teb zoo ib yam, ncaj ncees siv cov lus uas tsim nyog rau hnub nyoog.
- Kev rho tawm lossis kev tsis txaus siab: Qee tus menyuam yaus yuav rub tawm, thaum lwm tus tuaj yeem ua rau muaj kev vam khom ntau dua. Saib xyuas lawv cov kev xav tau los ntawm kev muab qhov chaw yog tias lawv thim rov qab, thiab kev nplij siab ntxiv yog tias lawv tau clingy.
- Tiv thaiv cov niam txiv: Cov menyuam yaus lossis cov hluas yuav zais lawv txoj kev xav kom tsis txhob ua rau koj txhawj xeeb. Qhia rau lawv tias koj tuaj yeem tswj tau lawv txoj kev xav.
- Kev xav txhaum lossis kev txaj muag: Cov menyuam yaus tuaj yeem ntseeg tias lawv muaj mob yog kev rau txim rau kev ua "tsis zoo." Muab kev ua siab mos, kev lees paub tseeb tias lawv qhov mob tsis yog ib tus neeg txhaum.
Yog tias koj tus menyuam tsis tu ncua, ntxhov siab, txhoj puab heev, lossis pom muaj kev hloov pauv ntawm tus cwj pwm lossis lub siab xav, nws yuav yog lub sijhawm los nrhiav kev pab ntxiv. Pediatric palliative care teams feem ntau suav nrog cov kws pab tswv yim, cov kws kho mob tshwj xeeb rau menyuam yaus, thiab cov neeg ua haujlwm sib raug zoo uas tuaj yeem muab kev pabcuam hnub nyoog tsim nyog raws li koj tus menyuam qhov kev xav tau.
Cov Lus Nug
Kuv yuav tham nrog kuv tus menyuam li cas txog kev saib xyuas tsev kho mob?
Thaum muaj kev sib tham txog kev saib xyuas menyuam yaus, nws yog ib qho tseem ceeb uas yuav tsum siv lus ncaj ncees, maj mam, thiab muaj hnub nyoog. Siv cov lus piav qhia txog kev mob rau menyuam yaus tuaj yeem pab lawv nkag siab tias muaj dab tsi tshwm sim yam tsis muaj kev cuam tshuam rau lawv.
Yuav ua li cas yog tias kuv tus menyuam tsis xav tham txog lawv tus mob?
Tham nrog cov me nyuam txog hospice txhais tau hais tias sib npaug ntawm kev ncaj ncees nrog rhiab heev. Muab chaw rau lawv los ua lawv tus kheej lub sijhawm, thiab qhia lawv tias lawv tuaj yeem tuaj rau koj ib txwm.
Yuav ua li cas yog tias kuv tus menyuam cov lus nug nyuaj dhau rau kuv yuav daws tau?
Kev piav qhia kev mob rau menyuam yaus tsis yog txhais tau tias muaj tag nrho cov lus teb; txhais tau hais tias ua ncaj ncees thiab txhawb nqa. Tej zaum koj yuav hais tias, "Qhov ntawd yog ib lo lus nug zoo heev. Kuv tsis paub meej, tab sis peb tuaj yeem paub ua ke." Los ntawm qhov ntawd, ncav cuag cov kws tshaj lij uas tuaj yeem pab qhia cov kev sib tham no raws li lub hnub nyoog tsim nyog.
Kuv tus menyuam yuav tsum ua lub luag haujlwm dabtsi hauv kev npaj lawv tus kheej saib xyuas?
Lub luag haujlwm koj tus menyuam ua hauv kev npaj lawv txoj kev saib xyuas nyob ntawm lawv lub hnub nyoog, qib kev nplij siab, thiab tus kheej qhov xwm txheej. Rau tus menyuam yaus, koj tuaj yeem muab cov kev xaiv yooj yim, xws li xaiv cov tsiaj nyiam coj mus teem sijhawm. Piv txwv li, ib tug hluas yuav qhia txog kev nyiam txog kev kho mob, cov neeg tuaj xyuas, lossis leej twg yuav tsum yog ib feem ntawm lawv pab neeg saib xyuas.
Pediatric Palliative Care hauv North Carolina
Nrhiav kom paub yuav ua li cas tham nrog koj tus menyuam txog kev mob tsis yooj yim. Ntau tus niam txiv txhawj xeeb tias kev ua siab ncaj yuav tshem tawm qhov kev cia siab, tab sis kev sib tham txog kev saib xyuas menyuam yaus yog qhov tseeb txog kev tsim kev ntseeg siab. Cov kev sib tham qhib, tsim nyog rau hnub nyoog no tsim qhov chaw rau koj tus menyuam nug cov lus nug, qhia txog kev xav, thiab tsis tshua nyob ib leeg.
Koj tsis nyob ib leeg thiab. Carolina Caring's Cardinal Kids program muaj kev saib xyuas tshwj xeeb rau menyuam yaus thiab tsev kho mob tsim los ua kom tau raws li lub cev, kev xav, thiab sab ntsuj plig ntawm cov menyuam yaus uas muaj mob hnyav thaum tseem txhawb nqa niam txiv thiab cov neeg saib xyuas. Los ntawm cov pob zeb ntau lub lis piam tom qab koj tus menyuam kuaj mob mus rau lub sijhawm nyuaj siab thaum poob, peb pab neeg muaj siab hlub yuav taug kev nrog koj thiab koj tus menyuam.
Tiv tauj peb kom paub seb peb pab neeg mob siab rau tuaj yeem txhawb nqa koj tsev neeg li cas.
